This weekend Rusty took the kids to a local park for a few minutes while waiting for me to finish at an appointment. He decided to put Matthew into one of the baby swings. Matthew’s body immediately stiffened in reaction to the new sensation of sitting in a swing, but his arms relaxed some. He even held on to the swing. The big news though, was his concentration on holding his head up. He kept his head up high and enjoyed the swing.
When Rusty showed me the picture of him in the swing, I cried. It’s not something that I imagined he would ever be able to enjoy. Well, some days I imagine Matthew overcoming everything and playing football like a champ but, a lot of days I try to be realistic with myself and accept that he most likely will never play football or even sit in a chair that doesn’t offer trunk support.
I swear that boy can read my thoughts. It’s like he waits for me to have a few days of feeling like things are never going to change and then he goes and does something amazing. “Take that, Mom”, he says. After transplant Matthew took several big steps backwards in his physical therapy. But, he has taken several huge steps forward in his speech therapy. He’s drinking 2-6 ounces by bottle and eating 1-4 ounces of baby food (when he wants to, of course). He’s enjoying little baby food snacks and eating things like bagels and doughnuts and french toast. Of course, I have to hold those things and put them in his mouth for him, but it’s HUGE that he opens his mouth for it and chews it and swallows it. Huge.
His ability to sit unassisted is far behind where he used to be, but he’s starting to make tiny steps forward in areas where he wasn’t moving forward at all before. He’s starting to try to roll over from both his belly and his back. He’s trying to bring his hand to his mouth. He’s digging his feet in to try to crawl. He’s reaching for toys more than before (with his right hand. That left hand is extremely difficult for him to get to do what he wants it to). He’s following things more. Comprehending story lines. Laughing at shows. Smiling in anticipation of his favorite part of a movie. He’s jabbering away. He’s using Dada more often and using the occasional Mama. He gets a big grin when I say “I love you, Matthew.” and moves his tongue to form ‘love’ although he’s just getting the “/l/” sound out right now. I swear he’s told me “No” too.
I sometimes feel like I’m on a swing of my own and Matthew is sitting beside me waiting for me to be discouraged on the back swing, waiting to remind me that he doesn’t care what people think, he’s going to do whatever he wants to do and he’s going to do it on his own schedule.
He reminds me of someone I know.