As part of our efforts to increase awareness of Matthew’s condition, and the prevalance of both OTC Deficiency and other Urea Cycle Disorders (UCDs), we are keeping a running list of links to web sources, other blogs, and other information that might be helpful to other families going through similar journeys. Please feel free to share resources and we will update accordingly.
More of Matthew!
Healing Matthew on Facebook (day to day updates, and more) – http://www.facebook.com/healingmatthew/
Healing Matthew on Twitter – http://www.twitter.com/healingmatthew/
Lots of Healing Matthew Photos on Instagram – http://www.gramfeed.com/instagram/tags#healingmatthew
National Urea Cycle Disorders Foundation – http://www.nucdf.org/index.htm
NIH page on OTC Deficiency – http://ghr.nlm.nih.gov/condition/ornithine-transcarbamylase-deficiency
Rare Diseases Network UCD Page – http://rarediseasesnetwork.epi.usf.edu/ucdc/learnmore/definitions.htm
Other Families and Stories
Alexa’s Adventures – http://moralesmoments.blogspot.com/
Ryman Little’s Story – http://rymanalilittle.wordpress.com/
Aiden’s Elephants – http://aidanselephants.co.uk/about-us/about-otc-deficiency/